Patient engagement has come a long way, but what can we be doing to take it to the next level?

By harnessing insights we’ve gained through interactions with patients, and our experience engaging with patients, we’ve created a vision for the future of patient engagement.

Read the eBook to explore our vision for the future of patient partnerships, and to see our recommendations for gaining a diverse range of insights throughout the lifecycle of treatment development.

Embedding patient engagement into the research and development process

Where does patient engagement fit into the R&D process?

The answer is: everywhere.

By engaging patients at all stages in the process, we can unlock valuable insights and accelerate clinical research.

Determining research priorities
Research design
and planning
Research conduct
and operations
Dissemination, communication,
and postapproval
Re-defining the ‘patient’

While patient experts have invaluable insights, you shouldn’t just stop there.

The lay patient
Involve patients from different communities, to get a diverse range of insights
Spouses often experience the patient’s condition second-hand
Children can discuss the impacts on family life, and how a condition impacts someone in the home
The caregiver
Caregivers can discuss the knock-on effects of the condition, and could be even more perceptive to small symptoms than the patient themselves
Friends and colleagues
Friends and colleagues can discuss the social impacts of a condition, and how it could affect someone’s career

The possibilities for insights are
truly endless

Restructuring the clinical research site visit

Currently, clinical research site visits are structured around what’s convenient for the sites, but is that right?

Taking part in clinical research can be a stressful time, and it can be hard for people to fit it in around their already busy lives.

It’s time we started viewing patients’ time as valuable.

To help people to deal with the stress of taking part in clinical research, and dealing with their condition, you should prioritise having support in place.

Support can look like:​

Providing patients with resources on mental health and wellbeing

Having a dedicated clinical research wellbeing team on hand

Creating forums for patients and their families to share insights anonymously

Outlining a clear process for the end of the clinical research study

Patient engagement can be tricky to get right
But that doesn’t mean we can’t try to improve the process


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